Ethics in public health surveillance.

Ethical issues in public health surveillance: a systematic qualitative review

BACKGROUND Public health surveillance is not ethically neutral and yet, ethics guidance and training for surveillance programmes is sparse. Development of ethics guidance should be based on comprehensive and transparently derived overviews of ethical issues and arguments. However, existing overviews on surveillance ethics are limited in scope and in how transparently they derived their results....

Justifying public health surveillance: basic interests, unreasonable exercise, and privacy.

Surveillance plays a crucial role in public health and for obvious reasons conflicts with individual privacy. This article argues that the predominant approach to the conflict--relying on a conceptual distinction between research and practice--is problematic and then offers an alternative. It outlines a basic interests approach to public health measures and an unreasonable exercise argument, wh...

Ethical justification for conducting public health surveillance without patient consent.

Public health surveillance by necessity occurs without explicit patient consent. There is strong legal and scientific support for maintaining name-based reporting of infectious diseases and other types of public health surveillance. We present conditions under which surveillance without explicit patient consent is ethically justifiable using principles of contemporary clinical and public heal...

Is the U.S. public health system ready for bioterrorism? An assessment of the U.S. public health infrastructure and its capacity for infectious disease surveillance.

Ethical issues in public health surveillance: drawing inspiration from ethical frameworks.

The issues raised by public health surveillance are typical of those involved in public health ethics. Surveillance calls, in particular, for the balancing of individual rights and collective interests, which are often in conflict. One of the issues most closely linked with public health surveillance is the collection and use of personal data for purposes of public concern. Numerous frameworks ...

Clinical trials of xenotransplantation: waiver of the right to withdraw from a clinical trial should be required.

Xenotransplantation pits clinical research ethics against public health needs because recipients must undergo long-term, perhaps life-long, surveillance for infectious diseases. This surveillance requirement is effectively an abrogation of the right to withdraw from a clinical trial. Ulysses contracts, which are advance directives for future care, may be an ethical mechanism by which to balance...